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All day the noise and smells from the roadwork behind my house assault my brain. Drilling, scraping, jackhammering, dumping, steamrolling, beeping. This has been going on for many months. They say it will be finished by the end of this year. Then the construction in our condo complex will make its way onto our block. The front porch of the house above ours is tilting downward. Sagging? Can concrete sag? To prevent the sudden collapse of the concrete onto our heads as we walk out of our front door, they installed two thick poles that frame our front door and theoretically hold up the dispirited concrete. Later, they added poles running diagonally from the front of our house to the cement stairs we walk down to reach our house. These poles prevented us from walking directly to our next door neighbor’s house. Instead we have to walk up our stairs and down theirs to get to the door that’s maybe six feet away from ours. More recently they installed large sheets of plywood next to our door and the neighbor’s door, and began to dig a hole through what was the walkway between them. I don’t know what the hole is for. It’s been there for months now.
At night the noise from within my head keeps me awake. Until the last couple years, falling asleep came easily to me, and I could do it under almost any circumstances. Now, the tiny blinking light from a digital device, the gurgle of the toilet running downstairs, the smell of my own sweat will keep me awake. As many nights as not I have to move to a different room because my husband is snoring. We’ve shared a bed for 21 years and I’m sure he didn’t just start snoring this year, but I’m no longer able to ignore it. He says I snore too, which may be true but he manages to sleep anyway.
Of course it’s not just the external stimuli that keep me awake. It’s also the trickster commonly called perimenopause. If you’re a woman my age and you’re experiencing almost any vexing symptom, it’s likely perimenopause. And it feels impossible to extricate the anxiety from hormonal roller coaster. It’s all in there, swirling around like ratatouille or risotto in my head, convincing me that it requires vigilance and constant attention, lest something boil over or burn.
Meanwhile, in my husband’s brain, insidious and mean-spirited demons, also known as glioblastoma, are at work. He is battling them with daily chemo pills and 30 doses of radiation, which surprisingly feels like nothing. He is feeling fine so far, after weeks of worrying that treatment would knock him out. I am holding my breath, wondering when the other shoe will drop. He is not working, which is understandably confusing for him. He’s had to work for the past three decades. Instead, he is making new friends. Our people have shown up for us in beautiful and powerful ways. Friends signed up to drive him to the hospital every day for radiation. Friends are coming over to play cribbage with him. Friends are taking him to his favorite park. Some of these folks he already knew. Some of them I knew but he had never met. Some of them were, honestly, just acquaintances or friends of friends or people on Facebook who we met 20 years ago, but now they’re real friends, because they are showing up.
My husband is an introvert. He cares about people and he cultivates relationships with people he volunteers and works with, and he is incredibly kind. But he’s often struggled in social situations where he feels like he isn’t being heard, or that his presence isn’t valued. Now, everyone tells him frequently and explicitly that he matters, that he is valued, and that they want the best for him and want to spend time with him and want to be of help. If only it didn’t take a life-threatening diagnosis to make this happen. In ordinary circumstances, it would likely be perceived (by many people, if not all) as awkward or odd to post on social media that you’re looking for good people to do fun things with your husband. But in this situation, it’s all good. He has often wondered (and worried) about what his legacy is, and if he’s made a difference in the world. Now he’s gotten hundreds and hundreds of affirmations and confirmations that his existence and his actions and simply his compassion and kindness have been known and felt and will have ripple effects far into the future.
While he was in the hospital, I embarked on some kind of fever pitch Marie Kondo quest to get rid of stuff from our house. We’ve always had a lot of clutter and I have always—constantly—steadily tried to purge things whenever possible. But this time around I was possessed by this fervor. Friends and family came over and helped me make decisions, organize, and physically remove junk from my house so I didn’t have to worry about it. Bags and boxes went to Goodwill. Bags and boxes were posted on Buy Nothing. I delivered donations to people I thought could use them. I cleaned, I consolidated, I threw away so much crap. Almost all of those piles of “we’ll figure this out later” are gone now. Not that our house is spotless or minimalist now, but I do feel a sense of relief that our existence is less crowded. It’s possible I thought that getting rid of all the unneeded physical stuff would also empty my mind of unnecessary garbage. And maybe in some way it did. Because something had to go to make room for the currently consuming thoughts of scheduling appointments and seeking support and following medication regimens, on top of the regularly scheduled concerns about parenting, paying bills, and that oft-mentioned and elusive “self-care” that I hear so much about. I went to the dentist today and learned that one of my teeth that already had a filling now has a cavity on its side so I will need a crown (or possibly a root canal!) and we’ve maxed out our dental insurance benefit. Does this count as self-care? Technically, I’m caring for myself, but it wasn’t terribly fun. I’ll keep working on that. Oh—I’m going to see live music tonight with friends. Much more pleasant than a root canal.
Between the time I started writing this and now, the noise has stopped. The construction workers have gone home for the day. The wind that’s been blowing leaves around has stilled. I’ll try to follow suit and allow my brain to quiet down as well. At least for a little while.
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Made lists
Cleaned bathrooms for no good reason even the toilets
Threw away old stuff
Poured more Drano down the shower drain
Checked pantry for mouse poop
Washed hands many times
Started laundry and sprinkled in essential oils to combat stink
Washed all the clothes I wore in the hospital and thought of Avett Brothers lyric
Ate a brownie
Finished the milk
Went through the accumulated mail
Found another speed camera ticket
Answered 12-year-old’s question “what happens if you can’t afford to pay a ticket?” by explaining they just keep doubling the fine until you can’t afford it even more and there’s nothing you can do about it
Perused the library books I checked out
Put several in the pile to return
Read a chapter or two of several others, mostly about British witches
Had hot flashes
Changed pajamas
Had hot flashes
Changed pajamas
Ate saltines
Tried to plug in 12-year-old’s phone but couldn’t find the charger
Dust-busted some lint in a corner
Looked online for used loft beds and chairs
Wondered why people use strange names for chairs
Thought about measuring space where chair would go but didn’t, again
Wondered why resale economics is so confusing
Put stuff in Amazon cart for when money appears in bank account
Felt guilty about using Amazon but not enough to stop
Rearranged apps on phone screen to reflect current realities and also make pretty patterns
Checked location of daughter out late at college and remembered it’s ok to go out late at college
Checked location of daughter to make sure she was no longer out
Piled up trash by the front door
Scowled at heap of recycling that has not broken itself down or taken itself out
Checked all social media platforms for anything important, found nothing
Couldn’t stop thinking even for a second during all this activity about the fact that there’s a tumor in a lab somewhere that was recently in my husband’s brain and how that clump of cells has changed all of our lives and we don’t even know how yet
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You know why I post about all these queer books and authors? Because reading builds EMPATHY and UNDERSTANDING. Reading helps us understand the thoughts and ideas and experiences of all kinds of people. Reading fiction achieves this as much or more than reading nonfiction, because it’s more accessible to many readers.
Anyone who questions why they would read about queer people if they’re not queer needs to examine this logic. Humans have been reading about people who are not like them as long as there have been books because humanity is made up of a million flavors of people and it’s a blessing and a gift to be able to learn about and explore the things we have in common and what makes us unique. We gain insights and new perspectives by reading about people from different periods in history, different places, different cultures, different religions…why wouldn’t we read about people with different gender identities and sexualities? The world is populated by billions of extraordinary ordinary people whose lives have meaning and value.
Ideally, we all have the opportunity to get to know lots of kinds of people in real life. But when that’s not possible, there are always books. I urge you, even if you’re not queer or don’t have queer loved ones (that you know of) or don’t have queer kids, read some of the books I’ve recommended. And if you DO know or love kids or adults who are lgbtqia+ please read some books I’ve recommended. Or other books by or about lgbtqia+ people. If you work with children or young people in any capacity, read some of these books. There are a ton of great book lists.
If you want to be an ally, learn more about the people you say you support. That’s a place to start.
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At my Unitarian Universalist church, we have a ritual every Sunday of lighting a candle of compassion, accompanied by a few words of meditation or prayer or our hopes for a better world–whatever you want to call it. Yesterday I served as the lay leader for the service and this is what I wrote when I lit the candle.
Each Sunday we light a candle of compassion for those in our community and around the world who are struggling or suffering. At this moment in history, the number of people who fall into those categories seems to be growing exponentially.
As UUs, we strive to cultivate equity, justice, and generosity, among other essential values. Meanwhile, a lot of people with a lot of power are working hard not only to remove these words from our shared vocabulary, but also to destroy their meaning and manifestation in our society. Which means we need to dig deep for compassion and hold tight to love. Our faith compels us to double down on kindness and refuse to abandon our commitment to our fellow humans.
It’s not always easy, though, as we bear witness day after day to selfishness, callousness, and utter disregard for humanity. So we must start by offering compassion to ourselves. We need to do what it takes to care for ourselves if we are to continue caring for others.
We share our compassion with all people who are isolated, persecuted, marginalized, or abused because of who they are or how they look or where they live or what they believe or their desire to be fully themselves. We hope for them mercy, relief, wholeness, and ease. We extend compassion to those who feel demoralized, devalued, and lost, and wish for them affirmation and encouragement and the understanding that something better is possible.
And, as we begin our celebration of pride month, may we offer our compassion to our LGBTQIA+ siblings and those who support them. We hope for them not just safety and belonging, but also love, and joy. We strive for a world where members of the queer community are not just accepted but authentically embraced.
May we extend compassion to all who need it, including ourselves.
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Inertia has me prisoner
Glued to the bed long after
I should have arisen
Captured by an invisible powerful pull
Sometimes I sleep.
My need is rarely satisfied.
Sometimes I glimpse the chaos and suffering of the world and
I have to disappear somewhere that it can’t reach me.
It may be cowardly but it’s true.
Most often I read novels.
For years and years all I read was realistic fiction but now reality is too painful
even if it’s fictional because I know at the heart of all fiction is truth.
Now my books are populated by wizards and witches.
Which makes me consider my own witchy tendencies and talents.
Witch has always been another word for a woman
Who stands on her own
Who knows things about people and the world
Who doesn’t care to conform
All of which is threatening to men
My books follow the paths of magical creatures who actually face human choices and consequences, or maybe they are universal choices and consequences
because we have no way of knowing
what goes on in the minds of vampires and demons
and there is plenty in the world
that we don’t have to see with our eyes
to believe in.
When I require a break from the plot,
I wade into an endless stream of crosswords,
a reliable source of immediate endorphins.
There I frequently encounter familiar characters such as Brian Eno and Uma Thurman and Che Guevara
and any of the King Olavs and Pope Leos and always a czar or tsar in the mix.
I spy many an imp, some tots on trikes, and French and Spanish ladies, both married and unmarried.
I often visit Erie (the lake, the city, and the county), I hear the echo of Caesar’s last words, many formulations of the Latin word for egg, and at least two ways to end a list.
I gaze at the bear in the sky and the guy with the belt. I am reminded of campaign slogans from before I was born and what to say when someone is sharing more than you want to hear and any number of Australian animals.
Occasionally, the two names of our current domestic terrorists come up,
even though I’m deep in the crossword archives when they were once
seemingly harmless rich idiots.
Harmless no more.
Eventually I am able to extract myself from the bed and go about my business
There are always more demands
on my attention
Than I can satisfy
Which is why the temptation
to hide under the covers
remains.
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I would get lost on a path
I would get wet under a roof
I would be jolted awake by silence
No one else can come to the rescue
It’s just me vs. the jackhammers
the narcissists the black holes the ignorant
the sirens and the mass of melting neurons
My cup has been emptied
Every drop leaking out before
I can bring it to my lips
I know I am not the only casualty
The brilliant rainbow and the fluffy white clouds are littered with bodies
I am not special
But I once was
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It’s just me and John Denver and the Muppets in the family room this Christmas Eve afternoon. I am wrapping presents. Everyone else is in their bedrooms, asleep or otherwise occupied by a virus (not COVID, we checked) or depression or a device. I am hoping the quiet alone time will enable everyone to muster the energy and good cheer required by Christmas Day with the family tomorrow.
Spread out across the kitchen table and counters are ingredients for treats that will likely not be baked tonight. Maybe if everyone rallies we will throw a few things together. Or not. I have secured two excellent vegan pies and a variety of appetizers and my brother-in-law is preparing the rest of the feast. Neither of my children have eaten much in recent days. My younger child suddenly doesn’t like any of the food they used to like. My older child has been dealing with stomach stuff. But we have another whole week of vacation so maybe people will be inspired to bake. Or not.
What I am giving myself this Christmas is the gift of letting go of expectations. The past 21 months have been like some kind of demonic algebra problem in which there are many more variables than constants. And even non-demonic algebra made me cry when I took it in junior high school. The universe is filled with ever expanding unknowns.
The kids and I just came back from a lovely drive-thru Christmas Eve moment at church. UUCA decided to cancel in-person services tonight after they learned from the Arlington Department of Health that COVID cases in Arlington had doubled from December 21 to December 22. Determined to share joy with the congregation, the ministers and staff set up luminaria along the driveway, the music director was playing carols outside on the keyboard, the ministers were festively dressed and waving their glowing Christmas wands and greeting families, then some mystery person was operating a snow blower so we enjoyed a moment of white Christmas Eve, and then the intern minister was handing out little goody bags including a candle we can light at home during the service, and he collected the hat and mittens we brought for the mitten tree. It was all very sweet and touching and we drove through a second time just to say thank you.
I’ve been listening to the audiobook of Jenny Lawson’s Broken (in the best possible way) and I am addicted to her honesty. She is absolutely hilarious. And she narrates all her own books so you definitely feel like you’re laughing right there with her. She also struggles with a host of challenging physical and mental illnesses, including severe anxiety and depression, and she holds nothing back when discussing them. Coincidentally, I just finished reading The Charm Offensive by Alison Cochrun, which I received at my friend D’s Jolabokaflod (book exchange party). Apparently I love reading romance novels now–some of my favorite books this year have been by Casey McQuiston (who I had the pleasure of meeting!) and Emily Henry. I always thought the genre was limited to the ridiculous Harlequin Romance novels I used to get from the library when I was 13 and flip through with my friend Diane to find the sex scenes and laugh hysterically. Or books you see in airport gift shops with terrible titles and pictures on the cover that make you cringe. But I’ve come to realize that there’s a new kind of romance novel that’s actually just a regular novel–funny and smart and compelling–whose plots happen to center on a romance and that include surprisingly charming sex scenes. Anyway my point here was actually that The Charm Offensive was a much about mental health and gender identity and how we treat each other as it was about romance. The book includes realistic depictions of OCD and anxiety and depression and self-discovery and stigma in our society.
I’ve read so many articles in the past year about how the pandemic has affected our mental health. As you might guess, or know for yourself, it’s not good news. For kids and young people, it seems to be even worse, because they’re mired just as deep in the intermittent isolation, the uncertainty, the constant churn of disappointment from cancelled plans, but they have so much less control over their lives and their choices than adults do.
My kids have been so happy to be back in school in person this year. Over the past four months they’ve made new friends, cultivated relationships with new teachers, and–not insignificantly–been able to leave the house every day, follow a predictable routine, learn things, see people besides us, and practice being their own individuals. I know the school system is prepared for a return to virtual learning if COVID demands it, but I dread that decision if it comes. Several schools in DC have already reverted to virtual learning for at least a few weeks as we ride out Omicron. It just makes my heart hurt to think about all of us home all the time again and trying to do work and school all at the same time in our little house and eventually driving each other berserk.
I love my kids so much. And I think they’re really awesome people. Not that I haven’t always felt this way, but you know how it’s easier to get perspective on people when they’re not staring you in the face 24/7? They are each unique, but they are also both funny and kind and creative. They both still want hugs all the time. They both love music. During the pandemic the four of us bonded watching live streams by Brandi Carlile, and we’re all going to get to see her perform live in 2022 if some freaking future virus variant doesn’t get in our way. For the past few Christmases, I’ve taken the kids to Five Below to shop for each other. They bought excessively sequined stockings there and filled them with treats they knew each other would like, and they opened them first on Christmas morning (in part to buy us time before we had to wake up). This year Niki learned that they too could be Santa, so at Five Below the kids chose treats for each other and for Randy and me. Today we’ve taken turns filling all our stockings with thoughtful surprises. I love being Santa and sharing Santa with them.
So we are moving slowly right now. And that is absolutely ok. We haven’t written any Christmas letters. Even my mom, who is the driving force behind this tradition, suggested that there’s not much to write this year because she doesn’t like to write about only negative things. Of course there have been silver linings. But there’s also been a lot of %*&(*^#@ (insert your favorite curses here). And when you’re surrounded by it, writing a cheerful missive seems just a little bit out of reach. We haven’t sent presents to our family members who live far away. You know who you are. I promise you’re still on our list, and we are grateful for the gifts you’ve sent that are currently under our tree. (At least we decorated our tree!) I have yet to send e-gift cards to any of my kids’ teachers. A few weeks ago I did remember to put out a box of snacks and drinks in front of our house for the delivery people. There are always a lot of delivery people and they are working their tushes off. I know they’ll still be busy after Christmas delivering the various things we ordered that are still sitting in Groveport, Ohio or Tucson, Arizona on Christmas Eve.
We’re doing the best we can. And I’ve learned this year that my best varies from day to day. Maybe even from hour to hour. Life is a lot. So many people I love have faced crises and losses this year. But we keep going. We provide shoulders for each other to cry on. We check on each other. And tonight we light candles to shine through the darkness. We hold onto hope. Neither the grinch nor omicron can keep Christmas from coming.
Merry Christmas to all. And to all a good night. Sending you all love, peace, and health.
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Someday they’re going to publish scientific studies showing that living through the COVID-19 pandemic actually destroyed our brain cells, ravaged our mental health, and smashed our attention spans to bits. For example, I literally could not finish writing the previous sentence without pausing to play a turn in a word game, responding to a text, and checking the weather forecast.
I know a lot of people who have been clinically diagnosed with ADHD, but I feel right now like almost everyone I know is extraordinarily distracted. Is it because we’ve had enough of sitting inside our houses and our brains are yearning for something else to focus on besides what’s in front of us? Maybe it’s because we spend all day on various devices for work and for socializing and for shopping and for entertainment and we are conditioned to attend to the pings and the pop-ups? Perhaps it’s because we are so desperate for a change–for good news and for a definite end to this pandemic that we welcome that little burst of dopamine that comes from a potentially exciting distraction. Maybe this next ping or ding or buzz will be the one that turns everything around.
When this research comes out, those of us who have lived through the pandemic will roll our eyes and make snarky comments, like we do now when we see headlines like, “Excessive consumption of alcohol shown to contribute to bad decision making.” Because someone needed to study that to prove it was true?
I keep wondering how long we’ll be able to use the pandemic as an excuse for everything that is wrong with us. Because 14+ months of intermittent isolation from friends combined with constant interaction with family and unending uncertainty about the future is a legit excuse. But it’s getting so old.
Zeke commented recently that he feels like he can hardly remember life before the pandemic. He just turned eight, so more than one-eighth of his life has been lived in this bonkers environment. When he goes back to school in the fall for third grade, will it all be weird or will he have forgotten what the old normal was like? We keep hearing about how there’s no going back to normal, there’s just creating a new normal. But right now it seems impossible to build anything more elaborate or lasting than dinner for my family, which is hard enough.
You Ask a Lot of Questions 