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All day the noise and smells from the roadwork behind my house assault my brain. Drilling, scraping, jackhammering, dumping, steamrolling, beeping. This has been going on for many months. They say it will be finished by the end of this year. Then the construction in our condo complex will make its way onto our block. The front porch of the house above ours is tilting downward. Sagging? Can concrete sag? To prevent the sudden collapse of the concrete onto our heads as we walk out of our front door, they installed two thick poles that frame our front door and theoretically hold up the dispirited concrete. Later, they added poles running diagonally from the front of our house to the cement stairs we walk down to reach our house. These poles prevented us from walking directly to our next door neighbor’s house. Instead we have to walk up our stairs and down theirs to get to the door that’s maybe six feet away from ours. More recently they installed large sheets of plywood next to our door and the neighbor’s door, and began to dig a hole through what was the walkway between them. I don’t know what the hole is for. It’s been there for months now.
At night the noise from within my head keeps me awake. Until the last couple years, falling asleep came easily to me, and I could do it under almost any circumstances. Now, the tiny blinking light from a digital device, the gurgle of the toilet running downstairs, the smell of my own sweat will keep me awake. As many nights as not I have to move to a different room because my husband is snoring. We’ve shared a bed for 21 years and I’m sure he didn’t just start snoring this year, but I’m no longer able to ignore it. He says I snore too, which may be true but he manages to sleep anyway.
Of course it’s not just the external stimuli that keep me awake. It’s also the trickster commonly called perimenopause. If you’re a woman my age and you’re experiencing almost any vexing symptom, it’s likely perimenopause. And it feels impossible to extricate the anxiety from hormonal roller coaster. It’s all in there, swirling around like ratatouille or risotto in my head, convincing me that it requires vigilance and constant attention, lest something boil over or burn.
Meanwhile, in my husband’s brain, insidious and mean-spirited demons, also known as glioblastoma, are at work. He is battling them with daily chemo pills and 30 doses of radiation, which surprisingly feels like nothing. He is feeling fine so far, after weeks of worrying that treatment would knock him out. I am holding my breath, wondering when the other shoe will drop. He is not working, which is understandably confusing for him. He’s had to work for the past three decades. Instead, he is making new friends. Our people have shown up for us in beautiful and powerful ways. Friends signed up to drive him to the hospital every day for radiation. Friends are coming over to play cribbage with him. Friends are taking him to his favorite park. Some of these folks he already knew. Some of them I knew but he had never met. Some of them were, honestly, just acquaintances or friends of friends or people on Facebook who we met 20 years ago, but now they’re real friends, because they are showing up.
My husband is an introvert. He cares about people and he cultivates relationships with people he volunteers and works with, and he is incredibly kind. But he’s often struggled in social situations where he feels like he isn’t being heard, or that his presence isn’t valued. Now, everyone tells him frequently and explicitly that he matters, that he is valued, and that they want the best for him and want to spend time with him and want to be of help. If only it didn’t take a life-threatening diagnosis to make this happen. In ordinary circumstances, it would likely be perceived (by many people, if not all) as awkward or odd to post on social media that you’re looking for good people to do fun things with your husband. But in this situation, it’s all good. He has often wondered (and worried) about what his legacy is, and if he’s made a difference in the world. Now he’s gotten hundreds and hundreds of affirmations and confirmations that his existence and his actions and simply his compassion and kindness have been known and felt and will have ripple effects far into the future.
While he was in the hospital, I embarked on some kind of fever pitch Marie Kondo quest to get rid of stuff from our house. We’ve always had a lot of clutter and I have always—constantly—steadily tried to purge things whenever possible. But this time around I was possessed by this fervor. Friends and family came over and helped me make decisions, organize, and physically remove junk from my house so I didn’t have to worry about it. Bags and boxes went to Goodwill. Bags and boxes were posted on Buy Nothing. I delivered donations to people I thought could use them. I cleaned, I consolidated, I threw away so much crap. Almost all of those piles of “we’ll figure this out later” are gone now. Not that our house is spotless or minimalist now, but I do feel a sense of relief that our existence is less crowded. It’s possible I thought that getting rid of all the unneeded physical stuff would also empty my mind of unnecessary garbage. And maybe in some way it did. Because something had to go to make room for the currently consuming thoughts of scheduling appointments and seeking support and following medication regimens, on top of the regularly scheduled concerns about parenting, paying bills, and that oft-mentioned and elusive “self-care” that I hear so much about. I went to the dentist today and learned that one of my teeth that already had a filling now has a cavity on its side so I will need a crown (or possibly a root canal!) and we’ve maxed out our dental insurance benefit. Does this count as self-care? Technically, I’m caring for myself, but it wasn’t terribly fun. I’ll keep working on that. Oh—I’m going to see live music tonight with friends. Much more pleasant than a root canal.
Between the time I started writing this and now, the noise has stopped. The construction workers have gone home for the day. The wind that’s been blowing leaves around has stilled. I’ll try to follow suit and allow my brain to quiet down as well. At least for a little while.
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Made lists
Cleaned bathrooms for no good reason even the toilets
Threw away old stuff
Poured more Drano down the shower drain
Checked pantry for mouse poop
Washed hands many times
Started laundry and sprinkled in essential oils to combat stink
Washed all the clothes I wore in the hospital and thought of Avett Brothers lyric
Ate a brownie
Finished the milk
Went through the accumulated mail
Found another speed camera ticket
Answered 12-year-old’s question “what happens if you can’t afford to pay a ticket?” by explaining they just keep doubling the fine until you can’t afford it even more and there’s nothing you can do about it
Perused the library books I checked out
Put several in the pile to return
Read a chapter or two of several others, mostly about British witches
Had hot flashes
Changed pajamas
Had hot flashes
Changed pajamas
Ate saltines
Tried to plug in 12-year-old’s phone but couldn’t find the charger
Dust-busted some lint in a corner
Looked online for used loft beds and chairs
Wondered why people use strange names for chairs
Thought about measuring space where chair would go but didn’t, again
Wondered why resale economics is so confusing
Put stuff in Amazon cart for when money appears in bank account
Felt guilty about using Amazon but not enough to stop
Rearranged apps on phone screen to reflect current realities and also make pretty patterns
Checked location of daughter out late at college and remembered it’s ok to go out late at college
Checked location of daughter to make sure she was no longer out
Piled up trash by the front door
Scowled at heap of recycling that has not broken itself down or taken itself out
Checked all social media platforms for anything important, found nothing
Couldn’t stop thinking even for a second during all this activity about the fact that there’s a tumor in a lab somewhere that was recently in my husband’s brain and how that clump of cells has changed all of our lives and we don’t even know how yet
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Inertia has me prisoner
Glued to the bed long after
I should have arisen
Captured by an invisible powerful pull
Sometimes I sleep.
My need is rarely satisfied.
Sometimes I glimpse the chaos and suffering of the world and
I have to disappear somewhere that it can’t reach me.
It may be cowardly but it’s true.
Most often I read novels.
For years and years all I read was realistic fiction but now reality is too painful
even if it’s fictional because I know at the heart of all fiction is truth.
Now my books are populated by wizards and witches.
Which makes me consider my own witchy tendencies and talents.
Witch has always been another word for a woman
Who stands on her own
Who knows things about people and the world
Who doesn’t care to conform
All of which is threatening to men
My books follow the paths of magical creatures who actually face human choices and consequences, or maybe they are universal choices and consequences
because we have no way of knowing
what goes on in the minds of vampires and demons
and there is plenty in the world
that we don’t have to see with our eyes
to believe in.
When I require a break from the plot,
I wade into an endless stream of crosswords,
a reliable source of immediate endorphins.
There I frequently encounter familiar characters such as Brian Eno and Uma Thurman and Che Guevara
and any of the King Olavs and Pope Leos and always a czar or tsar in the mix.
I spy many an imp, some tots on trikes, and French and Spanish ladies, both married and unmarried.
I often visit Erie (the lake, the city, and the county), I hear the echo of Caesar’s last words, many formulations of the Latin word for egg, and at least two ways to end a list.
I gaze at the bear in the sky and the guy with the belt. I am reminded of campaign slogans from before I was born and what to say when someone is sharing more than you want to hear and any number of Australian animals.
Occasionally, the two names of our current domestic terrorists come up,
even though I’m deep in the crossword archives when they were once
seemingly harmless rich idiots.
Harmless no more.
Eventually I am able to extract myself from the bed and go about my business
There are always more demands
on my attention
Than I can satisfy
Which is why the temptation
to hide under the covers
remains.
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I would get lost on a path
I would get wet under a roof
I would be jolted awake by silence
No one else can come to the rescue
It’s just me vs. the jackhammers
the narcissists the black holes the ignorant
the sirens and the mass of melting neurons
My cup has been emptied
Every drop leaking out before
I can bring it to my lips
I know I am not the only casualty
The brilliant rainbow and the fluffy white clouds are littered with bodies
I am not special
But I once was
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I just ordered $100 worth of dairy-free meal replacement smoothies for my teenager, to pick up at Whole Foods tomorrow, because eating anything solid causes her severe stomach pain and she’s nauseated all the time. She came home early from school yesterday, with a COVID test in hand and instructions on how to take it with a certified COVID test instructor watching her on video. She has taken dozens of COVID tests already, and she knows how to do it, but I understand they want to make sure people are doing it right. Certified COVID test instructor Mhaxine (who must recite her script a hundred times a day) had us focus my phone’s camera on various codes on the box and on my ID and on the test results. Zoe doesn’t have COVID, which I already knew. But now you can’t be home sick from school or go to the clinic without testing. You can’t go back to school without emailing the negative test results to the school nurse and attendance office. Meanwhile, we are going back and forth with the pediatrician and the pediatric gastroenterologist and Zoe is scheduled to have an endoscopy in two weeks. She’s missed two days of crew–which you’re not supposed to miss any days of between February 21 and the end of May. Tomorrow I’m going to deliver an açaí bowl to her at lunchtime because it’s one of the only things she’s been able to eat over the past few days without feeling sick. When your kid is miserable, all your priorities shift.
At least she has beautiful nails. I took her with me to the nail salon last weekend and she somehow managed to get acrylic nails without me noticing until I had to pay the bill. Even if she can’t eat, she can at least admire her nails and enjoy the sound of tapping them on her phone.
I have a list on my desk of all the appointments I need to schedule: mammogram (oh I guess I need to see the gynecologist first, to get a referral), colonoscopy, dentist, kids’ dentist, my dermatologist, etc. All things I’ve been putting off or rescheduling since COVID. Hopefully I won’t have lumps or polyps or cavities or dangerous moles. I keep thinking I could just spend a day making appointments, but that would not be a very pleasant day. Since COVID seems to be never going away, I just need to suck it up.
Also tomorrow I am taking Niki to a camp that they don’t especially want to go to, even though it seems amazing, because they would rather stay home and play video games all day, which they think is awesome but I do not. Tomorrow is a parent-teacher conference day, so they don’t have school, but I still have to work. Someday we will have a house where I can have an office that is not in the same room as the tv and the xbox, but that day has not yet come. So off to camp they go. Last week I finally finished signing them up for summer camps and classes. This year they have fencing and archery, a camp where they drive to different parks and explore them and look for little creatures and give them names (at least that’s what they did at that camp last year), book illustration, art, and Minecraft camp (I consented to one week of this since the rest of the camps are active or artsy). Three of the weeks (book illustration and art) are just half day classes rather than full day camps because I don’t have to work those weeks and so Niki will not complain about having to go outside when it’s hot or eat lunch in a room that’s smelly. I would say my kids are spoiled, but truthfully I don’t like eating lunch outside on the ground when it’s hot or in a room that’s smelly, so I can’t blame them.
Oh, how could I forget Niki is also going to sleep away camp for the first time this summer. We all think they will love it. They’ve been to family camp at Camp Friendship twice already. They know the people, they know the place. They have not, however, slept away from us in quite a while. They can go to sleep if someone is at our house, but not if they’re at someone else’s house. And they still love to fall asleep intertwined with a parent. We are having faith that it will all work out when they are at camp. Zoe will be there too, but of course not in the cabin with them. We still have six months to prepare. Zoe was homesick at night for the first few years she went to camp, even though she loved it there. She says she eventually would fall asleep just because she was exhausted. I am constantly reminding myself that my kids are capable of things we haven’t seen them do yet, and they will be ok. Hopefully we’ll be ok too. Whenever Zoe is at camp I check the website compulsively for photos of her having fun, and race to the mailbox to look for letters. I remind myself that, during a rocky first grade year, Niki dreaded school–and then it ended because of COVID. Then we homeschooled for a year. And they did not especially want to go back to school for third grade because it was so much fun being home with me all day! And they never had to get dressed! And they played video games after they finished their work! It took a while for them to get used to school again (as it did for most kids I think, whether or not they were homeschooled or virtual schooled or hybrid schooled last year) and now they actually like school. They come home and talk about what they learned, and look forward to seeing their friends, and miss school when they have to stay home. I honestly wasn’t sure that would ever happen again, since it basically hadn’t happened since kindergarten. I had started to think kindergarten was some magical year that we would never experience again and school would be a battle forever. But it’s ok now.
And there is a nation of innocent people being attacked for no reason by an evil lunatic dictator. There are a lot of blue and yellow flags and lights and tributes. But I sure don’t know what to do, except wonder why our world is such a mess. The president stood up for LGBTQIA+ kids and mental health care in his State of the Union speech, but did not mention canceling student debt, or racial equity, or DC statehood. I did enjoy seeing two women–Kamala Harris and Nanci Pelosi–sitting behind him though, instead of two white guys. And maybe if the other old white guys don’t get in the way, Ketanji Brown Jackson will be confirmed to the Supreme Court and we’ll be just a little closer to having more justices who look like the people in our country and again, not all old white guys. No offense to the old white guys I love. They are not the ones I’m talking about.
In preparation for a meeting at work today I watched this video by Georgetown Law professor Kristin Henning, author of The Rage of Innocence: How America Criminalizes Black Youth. I have the book on my desk to start reading next week. As part of my new job with DC Action, I’m working with folks to reframe the conversation on youth and crime. Professor Henning describes in the video how Black young people are targeted and often arrested or harmed because they’re seen doing normal adolescent activities. DC Action and our partners are working to help District leaders, journalists, and others understand that there’s more to the story of a 14-year-old charged with carjacking than the need to lock him up for a long time or hold him accountable. Does it not occur to anyone that when 12-, 13-, and 14-year-olds are committing crimes like these, we need to look deeper? As I’ve written in op-eds and blog posts, the people who need to be accountable are the adults who are failing to provide meaningful out-of-school-time activities, mentoring, emotional support, job opportunities, and mental health care to young people–especially young Black people–who have suffered disproportionately through the pandemic. I see the struggles in my own kids, who have as much support and resources as they could possibly need. So when I read every day about people trying to ban books by and about Black and brown people and LGBTQIA+ people (don’t get me started on Texas Gov. Abbott who would rather have queer kids committing suicide than offer their families support) and school systems prohibiting teachers and students from discussing race or racism, or people saying antiracism is actually racism, I get enraged. No wonder I can’t sleep.
This, I think, is why people are obsessed with Wordle right now. It’s not always easy, but it’s definitely solvable. You can point to it (which is why so many people post their scores, although I do not) and say, “Hey, I did a thing! I accomplished something despite my existential angst and general feeling of despondence about our country and our world and all the personal and global problems with which I am grappling.” Or maybe that’s just why I play Wordle.
I haven’t been back to church in weeks, even though they’ve resumed in-person services. Going to church has always brought joy to me and been so important in my life, but the thought of going back again where everyone is masked and I don’t recognize even my friends and hugging is no longer a thing just makes me anxious and sad. I know wishing everything were back to “normal” is futile and there’s no such thing as normal anymore. But I haven’t yet arrived at a state of grace where I can embrace the constant change and dizzying feeling of flux. Maybe some days. But not today.
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What is it called
when you’ve been
hiding inside
for so long
that when it’s safe
to emerge
you are reluctant
to embrace
your freedom
not quite
trusting
the invitation
What’s the word
for when you
can only
sit on a bench
watching people
who are probably
your friends
but whom you can’t
quite recognize
talk to each other
and laugh
you assume
they are smiling
too
What does it mean
when you’ve
forgotten
how to make
polite conversation
at a gathering of
more than
three people
when most
of the people
seem extraneous
and make you feel
awkward and
ill-equipped
for the world
How do you
follow the rules
when they are
constantly
being rewritten
how do you know
which ones to
obey and
which ones to
ignore
Where do you
find the strength
required
to survive
in the wild
when you’ve
become accustomed
to shuffling
back and forth
in your
designated
enclosure
littered with
all the evidence
of living
© Betsy Rosenblatt Rosso
April 2021
You Ask a Lot of Questions 