You Ask a Lot of Questions

I had another night of so many dreams it felt like I had never slept. And in one of the dreams even, I had been wandering around my church, although it looked utterly unfamiliar and was as large and labyrinthine as an IKEA. I couldn’t find any friends. I was looking for a chair to sleep in and suddenly it was 9am and people came along to tell me it was time to go on the work trip we were there for. A long line of little girls with freshly washed hair, all wearing soccer uniforms, was in the hall beside me and I wondered what work trip they were going on. Or if I was supposed to be participating in a soccer game instead.

This dream was yet another in a series of church dreams in which things are not right. Most of them in recent months have featured our former minister having reinserted himself into the congregation and operating a shadow ministry–oblivious to or unmoved by the fact that we have a new minister now. In every dream I am furious that he is there but powerless to do anything about it, as he doesn’t seem to recognize me or acknowledge my existence. It’s like I’m a ghost. There’s no worse feeling for me.

Of course there are moments–and sometimes even days–of lightness and joy. But more often than not when I wake up in the morning I am reminded of everything we are not allowed to do anymore, or whatever it is I want to do that my children will refuse to do, or the things I know I should do but don’t have the energy to attempt. I am often crushed by the avalanche of things I do not know and cannot figure out.

Zeke is deep into Minecraft and building worlds teeming with ordinary and fantastical creatures. He’s creating universes where he can do whatever he wants, and exert control. Worlds where he doesn’t have to fight with me about doing his writing assignments. So far he’s winning. I downloaded a new curriculum yesterday which I will employ on Monday to try to turn things around.

Zoe’s imaginary worlds are slightly more realistic, but filled with exchanges with friends and strangers and altered by filters. She lives in the universes of TikTok and Snapchat and Instagram. Both of my kids have gained access to places where they are in charge, where they are creative, where they construct their own identities. Places where I could kind of follow, but I would get lost pretty quickly.

So I play Words with Friends and do New York Times crosswords on my phone. I can finish most of the puzzles on my own. I have the feeling that I hear some people feel about math, that it’s satisfying because there’s one right answer and if you follow the steps, you will find it. Of course for me that only happens with words. With Words with Friends, there are a million possible answers, but it’s pretty easy to find a decent one. Since the pandemic started I have lost many more games than I have won. I don’t care. I don’t spend ages trying to find the words with the highest point value. Maybe a few minutes at most. The action of playing is enough for me right now–the discovery of a word. Long ago I realized that my scores in Words with Friends are closely correlated with my mental health and mood. I know a lot of people only play to win–not just in silly apps, but in life. I don’t believe in that.

And I read. And read. And read. Last night I read a middle grade book–Roll with It–by Jamie Sumner. When I finished the book I thought it was thoughtful and charming and an interesting perspective on what it’s like to use a wheelchair and have cerebral palsy when you move to a small Oklahoma town. I opened the Goodreads app on my phone to mark that I’d read it and give it some stars, when I noticed some one-star reviews. I don’t usually read other people’s reviews, but I was surprised by the critique that popped up and I read many of them. Apparently a lot of readers who are people with disabilities found Roll with It ableist and deeply problematic, citing numerous examples of how the author depicted both people with CP and in wheelchairs, and people on the autism spectrum (represented by another character) using inappropriate language and stereotypes. While I was reading the book I kept thinking that the voice of the narrator was honest and realistic, but clearly I don’t know. The author of the book is the parent of a child with cerebral palsy, and presumably based some of the story on those experiences. One of the criticisms of the book was how often the narrator noticed her mom’s tired eyes, which centers the mom’s experience more than the child’s. While I was reading the book, I appreciated those observations because I, too, am a tired mom. But I get it now that the story of the girl shouldn’t have to dwell on the effects of her disability on her mom. That is not her fault. So after reading the reviews I felt like a jerk for blithely enjoying the book and not thinking too hard about how it might seem to a person with a disability. I realized I was demonstrating able-bodied privilege all over the place. I understand that it’s not fair of me to escape into someone else’s trauma. I am holding my breath while I walk the line between wanting to learn about and from other people’s experiences and wallowing in my privilege. Even the forgiving net beneath me is a product of my privilege.

There is so much to learn. So much.