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Made lists
Cleaned bathrooms for no good reason even the toilets
Threw away old stuff
Poured more Drano down the shower drain
Checked pantry for mouse poop
Washed hands many times
Started laundry and sprinkled in essential oils to combat stink
Washed all the clothes I wore in the hospital and thought of Avett Brothers lyric
Ate a brownie
Finished the milk
Went through the accumulated mail
Found another speed camera ticket
Answered 12-year-old’s question “what happens if you can’t afford to pay a ticket?” by explaining they just keep doubling the fine until you can’t afford it even more and there’s nothing you can do about it
Perused the library books I checked out
Put several in the pile to return
Read a chapter or two of several others, mostly about British witches
Had hot flashes
Changed pajamas
Had hot flashes
Changed pajamas
Ate saltines
Tried to plug in 12-year-old’s phone but couldn’t find the charger
Dust-busted some lint in a corner
Looked online for used loft beds and chairs
Wondered why people use strange names for chairs
Thought about measuring space where chair would go but didn’t, again
Wondered why resale economics is so confusing
Put stuff in Amazon cart for when money appears in bank account
Felt guilty about using Amazon but not enough to stop
Rearranged apps on phone screen to reflect current realities and also make pretty patterns
Checked location of daughter out late at college and remembered it’s ok to go out late at college
Checked location of daughter to make sure she was no longer out
Piled up trash by the front door
Scowled at heap of recycling that has not broken itself down or taken itself out
Checked all social media platforms for anything important, found nothing
Couldn’t stop thinking even for a second during all this activity about the fact that there’s a tumor in a lab somewhere that was recently in my husband’s brain and how that clump of cells has changed all of our lives and we don’t even know how yet
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The book that Zoe’s urologist wrote (featuring Zoe’s story) comes out next week, and the website about it is itsnoaccident.net. I will be a blogger for the site. If I don’t tell our story, someone else will, and I know it better than anyone else.
Dr. Hodges has been amazing in his treatment of Zoe and ongoing support to us. He (along with his colleagues at Wake Forest Baptist Health–the gastroenterologist and physical therapist and the patient care staff) actually understood Zoe’s problem when no one else seemed to and have worked hard to help us resolve it.
I hope this book gets a lot of positive attention and helps parents, pediatricians, teachers, and school administrators understand the physiological challenge Zoe (and many other children) was dealing with and that Dr. Hodges’ research, insight, and advice will encourage them to be more patient, flexible, and open to helping kids get healthy.
You Ask a Lot of Questions 