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All day the noise and smells from the roadwork behind my house assault my brain. Drilling, scraping, jackhammering, dumping, steamrolling, beeping. This has been going on for many months. They say it will be finished by the end of this year. Then the construction in our condo complex will make its way onto our block. The front porch of the house above ours is tilting downward. Sagging? Can concrete sag? To prevent the sudden collapse of the concrete onto our heads as we walk out of our front door, they installed two thick poles that frame our front door and theoretically hold up the dispirited concrete. Later, they added poles running diagonally from the front of our house to the cement stairs we walk down to reach our house. These poles prevented us from walking directly to our next door neighbor’s house. Instead we have to walk up our stairs and down theirs to get to the door that’s maybe six feet away from ours. More recently they installed large sheets of plywood next to our door and the neighbor’s door, and began to dig a hole through what was the walkway between them. I don’t know what the hole is for. It’s been there for months now.
At night the noise from within my head keeps me awake. Until the last couple years, falling asleep came easily to me, and I could do it under almost any circumstances. Now, the tiny blinking light from a digital device, the gurgle of the toilet running downstairs, the smell of my own sweat will keep me awake. As many nights as not I have to move to a different room because my husband is snoring. We’ve shared a bed for 21 years and I’m sure he didn’t just start snoring this year, but I’m no longer able to ignore it. He says I snore too, which may be true but he manages to sleep anyway.
Of course it’s not just the external stimuli that keep me awake. It’s also the trickster commonly called perimenopause. If you’re a woman my age and you’re experiencing almost any vexing symptom, it’s likely perimenopause. And it feels impossible to extricate the anxiety from hormonal roller coaster. It’s all in there, swirling around like ratatouille or risotto in my head, convincing me that it requires vigilance and constant attention, lest something boil over or burn.
Meanwhile, in my husband’s brain, insidious and mean-spirited demons, also known as glioblastoma, are at work. He is battling them with daily chemo pills and 30 doses of radiation, which surprisingly feels like nothing. He is feeling fine so far, after weeks of worrying that treatment would knock him out. I am holding my breath, wondering when the other shoe will drop. He is not working, which is understandably confusing for him. He’s had to work for the past three decades. Instead, he is making new friends. Our people have shown up for us in beautiful and powerful ways. Friends signed up to drive him to the hospital every day for radiation. Friends are coming over to play cribbage with him. Friends are taking him to his favorite park. Some of these folks he already knew. Some of them I knew but he had never met. Some of them were, honestly, just acquaintances or friends of friends or people on Facebook who we met 20 years ago, but now they’re real friends, because they are showing up.
My husband is an introvert. He cares about people and he cultivates relationships with people he volunteers and works with, and he is incredibly kind. But he’s often struggled in social situations where he feels like he isn’t being heard, or that his presence isn’t valued. Now, everyone tells him frequently and explicitly that he matters, that he is valued, and that they want the best for him and want to spend time with him and want to be of help. If only it didn’t take a life-threatening diagnosis to make this happen. In ordinary circumstances, it would likely be perceived (by many people, if not all) as awkward or odd to post on social media that you’re looking for good people to do fun things with your husband. But in this situation, it’s all good. He has often wondered (and worried) about what his legacy is, and if he’s made a difference in the world. Now he’s gotten hundreds and hundreds of affirmations and confirmations that his existence and his actions and simply his compassion and kindness have been known and felt and will have ripple effects far into the future.
While he was in the hospital, I embarked on some kind of fever pitch Marie Kondo quest to get rid of stuff from our house. We’ve always had a lot of clutter and I have always—constantly—steadily tried to purge things whenever possible. But this time around I was possessed by this fervor. Friends and family came over and helped me make decisions, organize, and physically remove junk from my house so I didn’t have to worry about it. Bags and boxes went to Goodwill. Bags and boxes were posted on Buy Nothing. I delivered donations to people I thought could use them. I cleaned, I consolidated, I threw away so much crap. Almost all of those piles of “we’ll figure this out later” are gone now. Not that our house is spotless or minimalist now, but I do feel a sense of relief that our existence is less crowded. It’s possible I thought that getting rid of all the unneeded physical stuff would also empty my mind of unnecessary garbage. And maybe in some way it did. Because something had to go to make room for the currently consuming thoughts of scheduling appointments and seeking support and following medication regimens, on top of the regularly scheduled concerns about parenting, paying bills, and that oft-mentioned and elusive “self-care” that I hear so much about. I went to the dentist today and learned that one of my teeth that already had a filling now has a cavity on its side so I will need a crown (or possibly a root canal!) and we’ve maxed out our dental insurance benefit. Does this count as self-care? Technically, I’m caring for myself, but it wasn’t terribly fun. I’ll keep working on that. Oh—I’m going to see live music tonight with friends. Much more pleasant than a root canal.
Between the time I started writing this and now, the noise has stopped. The construction workers have gone home for the day. The wind that’s been blowing leaves around has stilled. I’ll try to follow suit and allow my brain to quiet down as well. At least for a little while.
Made lists
Cleaned bathrooms for no good reason even the toilets
Threw away old stuff
Poured more Drano down the shower drain
Checked pantry for mouse poop
Washed hands many times
Started laundry and sprinkled in essential oils to combat stink
Washed all the clothes I wore in the hospital and thought of Avett Brothers lyric
Ate a brownie
Finished the milk
Went through the accumulated mail
Found another speed camera ticket
Answered 12-year-old’s question “what happens if you can’t afford to pay a ticket?” by explaining they just keep doubling the fine until you can’t afford it even more and there’s nothing you can do about it
Perused the library books I checked out
Put several in the pile to return
Read a chapter or two of several others, mostly about British witches
Had hot flashes
Changed pajamas
Had hot flashes
Changed pajamas
Ate saltines
Tried to plug in 12-year-old’s phone but couldn’t find the charger
Dust-busted some lint in a corner
Looked online for used loft beds and chairs
Wondered why people use strange names for chairs
Thought about measuring space where chair would go but didn’t, again
Wondered why resale economics is so confusing
Put stuff in Amazon cart for when money appears in bank account
Felt guilty about using Amazon but not enough to stop
Rearranged apps on phone screen to reflect current realities and also make pretty patterns
Checked location of daughter out late at college and remembered it’s ok to go out late at college
Checked location of daughter to make sure she was no longer out
Piled up trash by the front door
Scowled at heap of recycling that has not broken itself down or taken itself out
Checked all social media platforms for anything important, found nothing
Couldn’t stop thinking even for a second during all this activity about the fact that there’s a tumor in a lab somewhere that was recently in my husband’s brain and how that clump of cells has changed all of our lives and we don’t even know how yet

The thing about migraines is that the pain is familiar but it’s never quite the same. Sometimes it builds slowly and slyly and you think optimistically that it won’t escalate, but will remain a manageable aggravation. Very rarely, you are correct.
More often when the pain starts you know immediately that it’s going to expand exponentially–you can imagine tiny migraine cells replicating until they fill your entire head. Sometimes the pain grips your eyes and engulfs them in flames or seeps into your ears. When it’s the barometric pressure inciting your migraine riot, it feels like a balloon is being inflated inside your skull and it continues to get bigger and bigger until you can envision nothing but your skull shattering into a million pieces.
Usually the muscles in the neck and shoulders tighten so much that everything from the top of the head down the spine feels like steel rods encased in cement. That particular part of the pain long outlasts the headache. After the headache lifts it still feels like a monster has crumpled my neck and back muscles into hard little masses that are stuck in my body. Stretching barely makes an impression.
What is most mysterious is when you know the moment that the migraine pivots–where the pain has reached its crescendo and begins to abate. Sometimes this takes minutes and sometimes hours. Sometimes it’s after the medication kicks in or after you’ve slept. The ascent and denouement can take any amount of time during any given episode. As it’s fading, the pain is still present, but no longer consuming.
Eventually, it’s gone. Every time a miracle. You know exactly how excruciating it was, and yet it has finally–finally–disappeared, leaving you able to function and feeling (mostly) whole again. At this point you think, “Hallelujah, my head is entirely free of pain at this exact moment! What a gift! What a surprise! Again, I did not die from that migraine even though at some moments I felt sure I would.”
Those hours lost to pain are gone forever, but at least you can think again and be a human moving through the world. Until the next one comes along.

